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Thread: Follicular Lymphoma for a while now

  1. #2461
    Moderator Top User
    Join Date
    Mar 2010
    Good to see you are able to sort things in a round able way, if you need a good hermit's cave Barry and I can give some good recommendations for the NE of England, though the flight might be a challenge.

    hope things get sorted

    NHL DLBC aggressive stage 4B advanced
    diagnosed april 09
    after 8 rchop and a couple of delays, in remission
    some long term side effects to manage post treatment
    some blips and investigations on the journey but now
    22nd oct 2014 discharged no more hospital visits

    we are all on a roller coaster ride, riding blind never knowing where the highs and lows are.

  2. #2462
    Senior User
    Join Date
    Jan 2015
    Wow K - such bureaucracy to have to muddle through. I hope it is all sorted out now and your immune system is on the way to recovery.

  3. #2463
    Administrator Top User Kermica's Avatar
    Join Date
    Jul 2009
    Thanks, all! I got things straightened out last Friday, received my booster and brought two doses home for self injection over the weekend. I go in today for another blood count, we will see how things are progressing when I do...

    Good health,


  4. #2464
    Experienced User
    Join Date
    Nov 2017
    Still reading all your updated, and wishing all the best.
    Keep it up!

    Take care.
    Nov/17 : Wife 36y diagnosed DLBC NHL in the Breast ( Stage 1AE )
    Nov/17 : Started 6 x RCHOP 21 ( finished Mar 2018 )
    Apr/18 : PET/CT early April confirmed in Complete Metabolic Response
    On to 15x Radiation ( total of 30Gys )
    May/18: Rads done
    Ago/18: 3x HDMTx completed!
    ... on to follopw ups...

  5. #2465
    Senior User
    Join Date
    Oct 2013
    Checking up on you and hoping all is going well. Sending my best.
    Age 61
    diagnosed March 20 2013
    High Grade Non-Hodgkin Diffuse B-Cell Lymphoma w/some Burkitt like cells involved
    PET showed spots on liver and enlarged spleen w/hot spots all over Lymp areas
    Treatment started Martch 29 2013 R-ECHOP 6 rounds (1 week on 2 wks home)
    Spinal tap w/chemo for insuarnce (clean spinal fluid)
    neulasta shot after R-ECHop treatment
    June 29 PET clean
    Sepr 12 PET clean
    Nov 11 2013 melanoma removed from back all clear margins 7 inch cut
    Nov 25 confirmed MRSA infection and cleared up with bactrim
    Dec 16 still waiting for wound to close and heal (on his lat and he works out)
    wound from melanoma healed and infection gone, great war scar now
    Cat Scan Dec19th scan was clean
    Feb 20th Ct came back NED "NO ENEMY DETECTED" WHEW!!!
    May 20th 2014 NO ENEMY DETECTED!!!!!!!!! CT clean
    Aug 12 Bloodwork came back as doing what it should be doing. Cat scan in Nov.
    Oct 08 2014 tested positive for hyperthyroid. testing this week to find out more.


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