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Thread: Follicular Lymphoma for a while now

  1. #1861
    Senior User
    Join Date
    Oct 2011
    Hey, glad to see your still kicking cancers a double s. Reading your treatment history is like reading a case journal from a medical study. I seriously think you could write a heck of a book. Throw in a few self help words of support and wisdom and you might sell a few copies. I agree it is targeted to a small group if you use nhfl in the title, so it might be better if it had a catchy title and empowering message as the General theme and splashes of cause and affect thrown in to sell. A blurb in the Times and your top of the best seller list. I have bought at least a half a dozen such books myself after reading a review. It might give you something to do on rainy fall/winter days. I want my copy autographed.

    Anyway, you know I have insomnia and decided to just drop by and say hey. All is good here. But very hot and humid.

  2. #1862
    Senior User Kimv's Avatar
    Join Date
    Dec 2015
    Chico, ca
    Hi Kermica, I, glad to hear you are celebrating life on a daily basis! Block parties are a lot of fun....and having Blues Travelor is the cherry on the cake. Please let us know the outcome of the CT scan. I am thinking of you and sending you and your loved ones big virtual hugs! xoxoxo xox k
    Oct. 27, 2015 diagnosed with angioimmunoblastic T cell lymphoma.
    December 2016 began choep chemotherapy-6 treatments 21 days apart.
    February 24 scan showed no evidence of disease!
    Continue choep chemotherapy treatments.
    APril 2016 returned to Stanford for high dose Cytoxan, removal of port, and insertion of Hicckman catheter.
    Neupogen injections daily to increase white blood cell counts.
    MAy 5, 2016 Apherisis.
    MAy 21, 2016 HIgh dose chemotherapy VP 16.
    MAy 24, 2016 High dose chemotherapy Cytoxan.
    MAy 26, 2016 Autologous Stem cell transplant.
    JUly 27, 2016 Scan shows no evidence of disease. Still In remission!
    October 31, 2016 Scan shows no evidence of disease...NED again!
    April 1, 2017 Still NED!

    love strong....live long❤️💜💚💛💙

  3. #1863
    Top User David52's Avatar
    Join Date
    Jan 2013
    Central Wyoming
    Kerm.....must be the week for scans. My Pet/ct is Tuesday....results show on Wednesday. This just never gets easier, for me anyway. Hang in there

    65 yrs old
    March 6, 2012: Diagnosed Anaplastic Large (T-) Cell Lymphoma, Stage 1 (ALK-)
    3 rounds of CHOP unsuccessful.
    Beginning mid-June, 2012, received 6 cycles of Brentuximab at Huntsman Cancer Institute, University of Utah. Pet scans after 4th and 6th cycles showed no evidence of lymphoma.
    Autologous bone marrow transplant in November of 2012.
    17 radiation treatments for "consolidation" purposes between Dec. 26 and Jan.17.
    100 day post BMT check-up (2/26/13): NED. Pet scan on 7/10/13: Still NED.
    One year post transplant check-up: Still fine; NED.
    18month post-translant scans, etc. All fine, save a bit of arthritis.
    11/14/14: 24 month post transplant check-up--still NED. Scanziety still sucks.
    5/15/15: No NED this time; reactive nodes in groin; scheduling biopsy.
    Relapse confirmed/ started every 3 week brentuximab
    Allo transplant in Feb 2016.
    100 day post transplant scans in June 2016 fine.
    1 yr. post transplant blood work fine; clean scan. No GvHD so far.

  4. #1864
    Super Moderator Top User Baz10's Avatar
    Join Date
    May 2011
    you know only too well my philosophy positivity one day at a time and pal you are way ahead of me on this.
    Forget who said, "frightened to die and to terrified to live".
    or words to this effect.
    You and I don't fit into either of the above.
    Life is for living and live it we shall.
    Thoughts are with you.
    Diagnosed stage 3 March 011
    Radical resection April 011
    Restaged 2b April 011.
    12/09 Colonoscopy clear but picked up hospital infection.
    Aorta & femoral arteries occluded.
    Clot buster drugs put me in ICU with internal bleeding. 9 blood units later they got it under control.
    Aortobifemoral surgery 5th May. yughh.
    PET scan indicates clear
    DEXA bone scan clear
    13/5 CT showed "unknown" but no concern from docs.
    Inguinal lymph nodes and severe groin pain.
    Ultrasound and MRI show no nasties. Pheww
    Groin pain and enlarged lymph nodes still there.
    October -still the same pains but under semi control.
    Additional chest CT scan ordered for 11th November prior to surgery.
    Sinus surgery done and dusted.
    July 2014 PSA at 5.10. 2months of antibiotics in case of UTI, jan 2015 PSA at 7.20.
    Prostate Cancer confirmed Gleason 3+3.
    Active surveillance for time being.
    Just a little recurrence and another 20 cm of colon vanished under the knife.

    Not all's rosy in the garden, but see following.
    Stop grumbling Baz, your still alive and kicking so far.
    Age and illness doesn't define who we are, but more what we are able to do.
    Do what I love doing, when I can until I can't.
    and dodging bullets in the meanwhile.


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